Did I ever tell you the story of me picking a fight with someone while wearing this shirt? True story.
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Last year on our drive to Florida we stopped for lunch after spending ten hours in the van. As I got the food something happened between Ryan and the boys causing Gavyn to lose his ever loving mind. I came around the corner to Gavyn yelling hysterically, Ryan trying to keep cool, the other boys mortified, and a couple who had turned around in their seats to stare us down. I went and placed myself right in front of them. The man asked me if I needed something to which I replied, “Oh, I thought you did since you can’t take your eyes off my family.” They turned around. I don’t think that’s what Mr. Rogers wanted from me. I have zero regrets.
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Gavyn and I spent 24 hours in the hospital this past week getting an EEG done. He was the most pleasant hospital patient. I really mean that. He had to stay in bed with sensors attached to his head and a video camera capturing his every movement. While he ate a cheeseburger and tater-tots he looked at me and said, “This is the best day ever.” Kill me. He’s the sweetest. When we got home, he couldn’t stop telling Ryan about, “Those girls, the nurses.”
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I went into the hospital with a suspicion. We almost left with zero answers but ended up leaving with an entirely new plan for him. It’s been a crazy week. Ryan has worked crazy hours, I’ve worked, been gone in the hospital, had
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I’ve not completely processed this week. There has been zero time for it. I just know when I put this shirt on this week, I laughed, remembering that day last July, and thinking about how I will always pick a fight when it comes to Gavyn. I’ve fought the uphill battle of his seizures for 4-5 years now. This is the first time I’ve gotten answers that make sense and jive with what we see every day. I hate epilepsy.
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